Ovarian Cancer Raising Awareness

  • Just some thoughts ...........

    FormerMember
    FormerMember
    1. Never be afraid to ask if you don't understand
    2. If you note some thing you feel wrong in the system - speak up.  I found my chemo treatment was never ready on time and the wait was hours.  Now in this particular hospital patients rarely wait as the gap between the oncologist writing out the prescription and the pharmacist making up the treatment was increased.
    3. Be prepared to support others after you have finished…
  • Winning through

    FormerMember
    FormerMember

    The four monthly oncologist's appointment arrived. As usual sat and waited and waited despite my appointment according to the receptionist being the first.  Another person went ahead of me - on enquiring I was told three appointments could be given for the same time!  What the logic is in this arrangement I cannot imagine - it only leads to a rise in frustration waiting extra time,  annoyance, raised stress levels -…

  • Doing well!

    FormerMember
    FormerMember

    Following my oncology appointment today I dont have to go back until the beginning of December .  Great news.  Had a different doctor yet again - funny only ever since the named consultant twice in all the time I have been under her.

    He kindly explained a few things that I had been concerned about and my CA125 reading is only 10!!!  So it looks as though I need a lot of execise to get rid of my ballooned stomach!  With this…

  • FURIOUS - ANSWERS ON A POSTCARD!

    FormerMember
    FormerMember
    The hospital have written to me  "there was no large ovarian mass at the time of the first two examinations".  I beg to strongly differ!
    Photo A – Taken January 2009 before my examination in May 2009.
     
     
    Photo B – Taken March 2011 – same trousers.!!  I can even put two hands inside them.
     
    So if it wasn’t a large ovarian mass – what was it!!!!  I didnt lose weight during chemo…
  • Boots to do Chemotherapy

    FormerMember
    FormerMember
    I read with absolute incredibility that Boots are going to do our chemo.  No I have not been drinking.  http://www.dailymail.co.uk/health/article-1349687/NHS-reform-Cancer-sufferers-given-chemotherapy-Boots-branches.html
     
    Why were we not told about this when Paul Burstow MP visited Macmillan?  That would have been an important discussion.
     
    Boots is nearer than the hospital – it is the only thing I can find in its favour…