Noj's blog

  • Music Music

    FormerMember
    FormerMember

    Music has really helped me through some of the tougher days.

    One of the things I have done is recorded some songs for my mum and my kids - not wishing to sound doomy and gloomy but I always figured it would be something for them to remember me by.... not that I'm planning to shuffle off any time soon! 

    Anyway - last time I recorded a song that I want played at my funeral.  It made for quite an emotional recording…

  • Feeling a lot better and making some progress with my dissertation....

    FormerMember
    FormerMember

    Hi all, I am finally feeling a bit more like my old self and am trying very hard to make some progress with my dissertation.  Some of you will already know that I am trying to find a way to make Ports more easilly available on the NHS after having such a difficult time trying to get my own and knowing what an enormous difference having one has made to my life. 

    Please read the rest of this post to see if there is any…

  • Starting to feel normal again

    FormerMember
    FormerMember

    This time last year I was just preparing for my second op - it was needed to acheive a wide margin and to hopefully close the gap in my wound which had been leaking serous fluid since my first op a month before.  I was also trying to get my head around the need for chemo and radio as follow in treatments.  I really had no idea what the journey ahead would be like.  There were lots of silent tears in bed at night and in the…

  • The 5th Herceptin... or maybe not...

    FormerMember
    FormerMember
    Muga scan results are in and it doesn’t look good.  Muga results are fine as long as they are within normal range and within a 20% drop of the baseline result.  So... what is a baseline result?  Well, I would have thought it would be the first result – mine was about 56%.  My second result, just before the Herceptin started, was about 74 or 78%... quite an increase!  My last result was 51%. So it is less than a…
  • The 4th Herceptin... if I make it!

    FormerMember
    FormerMember

    It's Christmas Eve babe...  (Opening line to fairytale in New York) .... 

    I'm delighted to say I'm not in the drunk tank!  Yes it is Christmas eve morning at 6am.  I'm sitting in my nice warm living room, the tree lights are on, the house is quiet and I'm contemplating both the last week and the week ahead.

    Last week I took a road trip with my mother.  We went as far as Meigle in Perthshire by way of…