Anal cancer – why the taboo?

3 minute read time.

Following the launch of our new booklet about anal cancer, Richard takes a look at why you may not even have heard of it.

These days, the word ‘cancer’ is far less scary than it used to be. Of course, no one wants to get diagnosed with cancer, but for many people the word itself carries less of a taboo. Cancer news stories, TV coverage and social media campaigns about inspiring people are common. Yet, although we’re happier to talk more about the ‘big C’, there are still some types of cancer that rarely get a mention – or only behind closed doors.

Anal cancer is one of these cancers – one of the last remaining cancer taboos.

When was the last time you read a news article about it? Or saw a show on the TV that covered someone with anal cancer? Farrah Fawcett perhaps, who very sadly died of anal cancer back in 2009?

To be fair, it is a rare type of cancer. Only about 1,200 people are diagnosed with anal cancer each year in the UK, which is small when compared with the 50,000 women diagnosed with breast cancer or the 37,000 men diagnosed with prostate cancer. Yet the incidence is on the increase. The number of people diagnosed with anal cancer has increased dramatically over the last 40 years.

So why is anal cancer still such a taboo?

Firstly, we’re often embarrassed to discuss this area of our body and all its ‘functions’ – with time this may change, after all it wasn’t so long ago we felt the same talking about testicles and breasts. And secondly, anal cancer is incorrectly believed to only be caused by sexual activity. Double whammy!

It’s true that the human papilloma virus (HPV) is a major cause of anal cancer, and that HPV is mainly transmitted sexually. But HPV is very common – nearly everyone that’s sexually active will have HPV at some time, and only very few of them will get anal cancer.

It’s also true that anal intercourse will increase your risk of anal HPV and subsequently anal cancer. But anal cancer doesn’t just affect men who have sex with men, in fact it’s more common in women than men, and research also shows us that anal HPV is also fairly common in heterosexual men.

The bottom line (sorry) is that many of the people who are diagnosed with anal cancer each year won’t have any of these risk factors.

Let’s talk about anal cancer

At Macmillan we don’t believe in blaming people for being diagnosed with cancer. We also think all cancers should be talked about. Talking about cancer helps to raise awareness, which can help with early diagnosis, access to the best treatments and an increase in research. It can also help people not to feel alone.

We’ve recently produced a new booklet called Understanding anal cancer, which explains the possible causes, how it’s diagnosed and treated, and ways of coping with side effects and the emotional impact. Order your free copy now if you or anyone you know is affected.

We also have information about HPV and about talking about cancer.

If you find it difficult to talk about your diagnosis of anal cancer, or you just can’t bring yourself to tell people, our information specialists are happy to help. You can talk to them anonymously and get the information and support you need. No one should face cancer alone.

We're with you every step of the way

Join our anal cancer group on the Online Community.

The Macmillan team is here to help. Our cancer support specialists can answer your questions, offer support, or simply listen if you need a chat. Call us free on 0808 808 00 00.

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Keep in touch Follow Macmillan’s cancer information team on Twitter @mac_cancerinfo

Anonymous
  • FormerMember
    FormerMember

    Richard, thank you for raising this subject. As a sufferer of anal cancer, I found it all but impossible to use the 'a' word when I was first diagnosed. I behaved very mysteriously about it and called it a rare kind of bowel cancer. I'm better about it now and can talk more openly about it. This has a lot to do with belonging to the anal cancer group here in the Macmillan community, where we can talk openly to one another about this oh-so-embarrassing disease.

    Although I'm an old hand now, having been diagnosed 4 years ago, I'm going to download and read your booklet right away. Again, thank you so very much for raising and publicising this issue.

    With best wishes, dyad

  • FormerMember
    FormerMember

    I am so glad there is now a booklet on this cancer. Luckily for me I am a very outgoing person and dont have a problem telling people I have anal cancer but I fully understand why others may have difficulty. I dont have the hpv virus and have never partaken in anal intercourse. I see it as one of those things. Most people have thought I meant bowel cancer but I am quick to put them right, not many people know anal cancer even exists so thank you for the booklet and I hope its on the shelves among all the other cancers so it can be "put out there" Thank you.

    Love

    Sandra x

  • FormerMember
    FormerMember

    I am very glad to see this latest publication. I still struggle with the 'A' word and think I always will. I choose not to tell people what type of cancer I had, and if asked still say bowel cancer. Apart from the reasons above, smoking is also another factor in AC. I tested negative for HPV, did not participate in anal sex and never have, but I did smoke for years. The toxins from cigarettes exit your body via urine and bowel movements. Perhaps they should put this as a warning on cigarette packets. That might make people sit up and take notice! I hope this booklet helps people to understand anal cancer. 

  • I read the booklet with great interest.I too don't often tell people I had Anal cancer ,just say it was a lump up my bum.People either look surprised and laugh a bit then they are interested to know how I found it !! I was negative for HPV and never smoked so who knows.It isn' t seen or heard of which it should be so ,well done !!!