The Basic Science of Carcinoid Tumours

3 minute read time.

I've been interested in science since my school days and seem to remember it was separated into Biology, Physics and Chemistry for study and examination purposes. Biology wasn't on my radar and as I found Chemistry boring, I focussed on Physics which seemed to be much more 'modern' and exciting.   Curiously, at the beginning of my Open University degree course some 25 years later, I found the Biology and Chemistry modules of my foundation year the most enjoyable part of the whole 6 year study.  Different teaching methods? different teachers?  Perhaps, but I suspect some maturity was involved plus a hunger for new knowledge.  This mind-set didn't really change much and I went on to study some fairly technical post graduate stuff a few years later!

Just lately I seem to have caught the learning bug once again and I'm now considering starting a home learning course on human biology.  However, this time it's personal as I want to cement the general medical knowledge I've gained in the past 4 years since being diagnosed with Neuroendocrine Cancer (Carcinoid) - read about this here http://wp.me/p4AplF-1W

Like many other NET Cancer patients, I feel I need to know a lot more than the average cancer patient.  For me, this can be attributed to a number of reasons including (but not limited to):

  • This cancer arrives and goes on to upset the body with vague symptoms and I need to be able to at least assess if something is or isn't potentially connected to my condition.
  • This type of cancer is rare and even some medical staff struggle to understand it. I want to be able to articulately explain my condition when this happens.
  • When speaking to those who do understand it, I want to understand what they are telling me.  Moreover, I want to challenge them when I don't understand (or don't agree with) what they are telling me.
  • My condition and its treatment comes with side effects and I want to understand what these are and how they might impact on my quality of life so I can manage that and/or seek assistance.
  • I suspect I'm still a control freak despite my situation!

I've gained my recent medical knowledge by carefully studying well respected websites and publications but I'm always very selective about which sites to trust - see blog:  http://ronnyallan.wordpress.com/2014/05/17/google-is-not-a-synonym-for-research/  Through this process, you also learn who the specialists are and seek out their articles and publications.  That's not to say I fully understand everything I read or interpret in the right context!  However, if you want to become your own 'advocate' or be a 'powerful patient', then knowledge is one of the things that can empower you!  I have blogged before on patient engagement - see here http://wp.me/p4AplF-1W

Dr. Gene Woltering
Dr. Gene Woltering

One of my most recent 'educational discoveries' was a 12 year old (but still relevant) paper found on the Carcinoid Cancer Foundation's website.  It comprises the text of a presentation by Dr Gene Woltering entitled "Introduction to the Basic Science of Carcinoid". Dr Woltering is a well known NET Cancer expert from USA.  I found his paper fascinating even without the accompanying slides. What Dr Woltering has been able to do is to bring the science of carcinoid to the level where it could be understood by carcinoid patients - he certainly had the motivation as it was directed at 200 carcinoid patients who can be very inquisitive types :-) Dr Woltering is 'direct and to the point' which I really appreciate from medical staff.  Not only is this paper informative to the point of being extremely useful to inquisitive patients like myself, but there is some really interesting history in it too. For example the first use of Octreotide in USA and its first use in the treatment of 'Carcinoid Crisis'.  The 'plain language' description of the role of 'somatostatin' and 'somatostatin analogues' (a man-made version) is more understandable than other versions of these processes I have read previously.  I strongly recommend this paper to carcinoid patients with a thirst for a deeper understanding of their disease.   You can find it here:http://www.carcinoid.org/content/introduction-basic-science-carcinoid 

 

Ronny Allan

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Finally, please note this post contains my own views and opinions.  It does not necessarily reflect the views or opinions of my medical team or any Cancer or Charity organisation with which I’m associated.

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