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  • Blog Post: 337 days later ......

    Posted by
    Posted 11 months ago
    Hello everyone. So you thought I drop off this planet, well nope I did not. Let me bring you up to speed, after my operation, life seemed to return to normal, I had the 6 weeks off work, but when I returned things just did not seem to be the same, as someone whom works for the railway I have to...

  • Blog Post: side effects from palliative brain radiotherapy 2 weeks ago. Now has infection/hospitalised.

    Posted by
    Posted over 1 year ago
    Anyone had any similar experiences / advice / help on questions I should be asking doctors on behalf of family? Father has Grade 4 kidney cancer (has tumours on his one remaining kidney, on the kidney bed site of kidney removed 15 years ago, tumours on lung & one on brain. Sutent is controlling kidney...

  • Blog Post: Dad back home - stopped sutent but will hopefully start again in 2 weeks at lower dose

    Posted by
    Posted over 2 years ago
    29.9.11 - dad back at home. Was told to stop taking sutent (2 days ago) because platelet count low and potassium low. They would like him to have a 2 week break and then will hopefully start back on sutent - prob at the lower dose 37mg (instead of 50mg). His blood pressure and temperature stablised 2...

  • Blog Post: 26.9.11 p.m. - stopping sutent cos low platelet count & low potassium

    Posted by
    Posted over 2 years ago
    Doc told dad that stopping sutent because platelet count low (has been dropping apparently over last few blood tests) and potassium low. Will give potassium supplement and may consider putting back on sutent at lower mg than before. Temp still up at 38. Dad walking around & out of ward with his...

  • Blog Post: Dad's infection-still can't pinpoint -"mapping" heart to see if from pacemaker/wire

    Posted by
    Posted over 2 years ago
    Dad still in hospital having fallen at home due to weakness arising from infection. Doc can't pinpoint where infection coming from (chest xray clear, urine clear, blood tests not pinpointing). Temperature still going up and down. So now going to "map" heart to see if infection coming from...

  • Blog Post: sutent -day 16 - Dad collapsed through weakness/infection

    Posted by
    Posted over 2 years ago
    Day 16 of dad's first cycle of sutent. Last night dad in A&E because had to call ambulance after collapsed on lounge floor. Couldn't get himself out of his armchair and then fell. (Apparently been in bed for two days, hardly eating and extremely weak for last two days). Managed to crawl...

  • Blog Post: 12.11.11 today's thoughts re what next

    Posted by
    Posted over 2 years ago
    Writing this down for my own sanity, hoping that if I see things in black and white, I might order my thoughts and know how to progress! Not sure if I should contact my dad's cancer specialist direct to ask the questions that i would like answered (and feel remain unanswered after dad's visit...

  • Blog Post: new to site.family member with kidney,brain,lung tumours

    Posted by
    Posted over 2 years ago
    New to site & looking for as much info/similar experiences/suggestions. Family member diagnosed 6 weeks ago with grade 4 kidney cancer. He is 70, has high blood pressure (controlled by medication), a pacemaker to regulate his atrial fibrilation. Had one cancerous kidney removed 15 years ago (without...

  • Blog Post: update on sorafenib tablets.

    Posted by
    Posted over 2 years ago
    Ok its a week now this is an assumption but i think I'm on the tablets not the placebo. Have had to get medication for my bp which is doing summersaults. but apart from a itchy ( very ) scalp I'm fine. watch this space. :)

  • Blog Post: My granddad has cancer.

    Posted by
    Posted over 2 years ago
    I am new here, my name is Sam I am 26 and an art teacher and my dear granddad was diagnosed with cancer on tuesday. He has been unwell for quite some time, loss of appetite, a cough, loss of weight and generally not feeling as active as normal. He is 85 years young, my rock, my icon, my guide and...
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