Misdiagnosis

2 minute read time.

On July 27th 2014 my brave Dad lost his fight to Lung Cancer at 55. I am heartbroken, angry, upset, scared, lonely but I am also very passionate about helping others and raising awareness.
I firmly believe if my Dad had been correctly diagnosed at the start of his symptoms he wouldn't have been taken from us so soon.

He was continually sent away from the doctor surgery with antibiotics and told it was maybe a chest infection, pneumonia, or bronchitis. It wasn't until the 4th visit that we decided to go Private for a consultation that we found out what it really was. The consultant knew straight away from just listening to Dads breathing, at which point he ordered a CT scan the following day. And the following day they noticed the dark shadow mass which other scans had "failed to show" which was impossible. The consultant then ordered a biopsy be taken, and days later we had the phone call to confirm it was Lung Cancer.

At this stage the consultant had booked Dad in for a PET scan in Nottingham to determine whether the Cancer had spread, bear in mind at this stage we all thought it was just a mass in the right lung, so it may have been operable. The PET scan unfortunately showed the cancer had spread to the bones, neck and liver, at which point it was stage 4 terminal.

I actually left the consultants room to be physically sick, then composed myself and walked back in the office to hear what he had to say. I looked into my Dads eyes and could see the fear, I had never ever seen my Dad scared. It was eery and surreal.

Dad composed himself and asked the consultant what the prognosis was, he went on to tell us 10 months..... I felt sick to my core... 10 months left with my Dad, who the hell has the right to tell anyone that???? I was mad at the consultant inside but he was only doing his job.

We had time to sit as a family before we went into see the oncologist to discuss treatment options. Luckily for Dad he did have private health so the chemo was going to start a lot quicker than it would have on the NHS. But still I couldn't believe I had just been told 10 months.

The rest of the story is for another time but my point is that if Dad has been properly diagnosed by the Doctor the first time he went in maybe we wouldn't be facing stage 4, maybe we could be facing stage 1/2. No one wants to deal with Cancer whether you have it or your helping someone fight it, but if the Dr's weren't so quick to send people away with antibiotics etc and actually looked at the worst case scenario then there would be a lot more people still with us today.

Anonymous
  • FormerMember
    FormerMember
    Hi I'm so sorry to hear about your dad. I completely agree with your post. My husband went to the gp with a lump in his groin that was getting bigger and eventual diagnosis was hernia. By the time we got to a proper diagnosis it was stage 3 non Hodgkin's lymphoma. Had we got an earlier consultants appointment we would have been stage one. We're in Nottinghamshire by coincidence. Can I send you a friend request as I too would like to do something to make people aware. We are also going private for a second opinion as we can't get any straight answers out of the consultant as and when we see him Take care Helen
  • FormerMember
    FormerMember
    Hi Daniel, I am so sorry for loss of your dad. Sadly misdiagnosis or delayed diagnosis seems to be far to frequent. My own story is also a similar one. Took my GP three months before she took my symptoms seriously. Same old story, kept giving me antibiotics. I knew something was wrong. When I was referred she sent me to the wrong department, hence more delays. My tumour was stage 4 by this time. If GP had acted sooner tumour would have been smaller and treatment less debilitating. The hospital have been faultless in their treatment, but I have no confidence in my GP any more. I may change to another surgery. I know GPs can't know everything, but they do not refer quickly enough for patients with suspected cancer symptoms. It would be nice to think that in the future this will change. Best wishes to you.
  • FormerMember
    FormerMember
    DanielK I do feel for you. Oh HOW I know what it feels to have one's opportunities for extra life with your Dad gobbled up by doctor error. It adds such a heavy burden on top of the ton weight of the disease. Oh! if only, if only ... so very difficult to come to terms with it. But even in that, you are not alone.
  • FormerMember
    FormerMember
    I'm so so sorry about your dad. I'm so angry at how many people are getting 'misdiagnosed' or quite frankly shunted aside. Same happened with my dad he was in agony for 6 months with apparent arthritis to then find out it was terminal cancer starting in his prostate now in his hip, spine, lymph anodes and chest. This is what angers me the most is that things like this could have been prevented, many people could still be with their families today. Chin up I know how hard it is but we all have to be strong for our families and each other :)
  • FormerMember
    FormerMember

    I am so sad to read all of your experiences. It’s ridiculous how doctors are the ones supposed to help, but sometimes fail to do so.

    I hope I’m wrong, but I think my dad’s diagnosis wasn’t thoroughly done and something is missing.

    I say this for various reasons:

    1.He was diagnosed with non hodgkin lymphoma in a matter of 2 weeks, pretty fast.

    2. Inmunohistochemistry was done only to tumor in the liver to confirm it was metastasis from lymphoma and not other type of cancer, but mediastinal tumor was only analyzed with microscope, biopsies, tomographies. I don’t have any specifics on the tumoral markers, or inmunofenotype for this tumor.

    3.A dr. friend of our family looked at his xrays and scans and adviced us to get a second opinion because it looked like something else, which we didn’t because hospital made a big deal about returning the biopsy slides.

    4. We visited an oncologist is Monterrey Mexico for guidance/second opinion, and he said doctors should’ve done a bone marrow test, should increase doses of RCHOP, and found “muscular pain” was deep vein thrombosys.He’s checking the biopsy slides and we’re awaiting results.

    5. He had a dry cough before chemo due to the tumor, and it went away after the second round of chemo, but came back even worse after the third chemo, with pleural effusion. If tumors reduced half the size, why did symptoms come back?

    I hope I’m overthinking and it’s nothing and my dad can overcome this. But what are your thoughts?