Diagnosed

2 minute read time.

Five days before my fifteenth birthday, I walked into the house that I share with my mum and my dog. To me, it was a normal day, but looking back, i should have guessed that something was wrong. My mum had called me just three hours before, and strangely, asked me why the kettle was not working. I responded, "try plugging it in."

Anyhow, I walked in and called to my mum, who was laid on the sofa, "are you okay?" My mother replied with no, and when i stepped into the living room, it was apparent why she was not feeling well. She looked me in the eyes as I inspected the grazes and bruises on her face, then she suddenly started screaming - a scream that still chills me now. I screamed, and ran outside, I was scared, but i realised what i had to do. I walked back in and tried to put my mum in the reconvery position, but it was like trying to manouvre a dead weight as she jerked violently. I rang an ambulance whilst she foamed at the mouth.

The paramedics were amazing, they helped me and my mum massively, and they calmed me down despite my fear of hospitals. They also arrived within 5 minutes of my call.

At the local hospital, it was established that my mum had had two fits, one outside, and therefore had gained bruises and a black eye, and the second one when i found her. After a very tense few hours, the local hospital gave my mum a CT scan and showed us the results - they were fascinating, but daunting. They showed 4 areas of bleeding on the brain that had under gone calcification (hardened to the density of bone) and a shadow.

My mum was kept in overnight and was then transfered to a Neurosurgical Ward in a hospital that specializes in Neurosurgery. The day before my birthday, my mum had brain surgery, but because the tumour was the size of an adult's fist and included two major blood cells, not all could be removed. I felt so selfish, and i still do, because i was so scared that i would lose the only family member that I care about.

Two week after the op, we were told that my mum's brain tumour was a malignant Grade 3 Oligodendroglioma. This meant two important things; 1) my mum has (and always will have) cancer, and 2) the cancer is quite agressive but is treatable. The neuro-oncologist broke the news that my mum has approxiamately 5 years left with us, but hopefullly, her strong spirit will add some more time to that average.

My mum has taken the news well, well, as well as cancer news can be taken. She starts her radiotherapy sometime soon and is eager for her treatment. I feel selfish, I feel like it should be her writing this blog, not me. She says I'm brave, but I know that I am not, but I will try and stay strong for her - its all I can do.

 

Amber

Anonymous
  • So sorry you have to witness your mum going through all this pain and treatment. I'm sure you'll be there to give her comfort and support.

    I do wish medics wouldn't give 'time-scales' of  survival. They may be accurate... or, given the case-histories reported on this site, wildly inaccurate. Take it day by day and take every opportunity to show your mum how much you love her.

    KateG

  • FormerMember
    FormerMember

    Hi Amber,

    OK welcome to the site  but so sorry you find your self here and needing to join us.  I really do hope you understand when I say the Cyber world can be such a dangerous place and while you have been so honest in saying how young and vunerable you feel  maybe you need to amend your bio details.

    you have seen and been through so much at your age its hard to find words to help.

    OK - Understand you are hurting for your Mum and I think you have been so brave in being so open and exposing your emotions, you sound so mature and maybe you have had to grow up fast in facing all you have. Please be careful - the ladies on here will take you under their wings and help and guide you - but please take it in the spirits meant - please be careful when you respond to any guys - that write back to You - including me !  this site does not restrict access.

    I know your Mum is lucky to have a carer like you - who is compassionate, brave and Mature - but please think of your self and stay safe

    with a friendly hug

    John x

  • FormerMember
    FormerMember

    Gosh, I'm sorry to read this. It's a lot to deal with when you're so young.

    I'm 37 and my 64 yo father was diagnosed last month with a stage iv glioblastoma (aggressive brain tumour) after suffering a massive epileptic fit. Even at my old age, I have been feeling terrified and bewildered and scared out of my mind but the people on here have been a tremendous support to me.

    Please make sure you ask for help - you are still so young and I should imagine taking your GCSE's this year. You must think of yourself too.

    Thinking of you.

  • FormerMember
    FormerMember

    Sorry, I wanted to add that my dad is three weeks in to his chemo/radiotherapy regime and it hasn't been anywhere nearly as scary as I thought it would be. Take one day at a time then things don't seem so daunting.

    This might sound like a stupid question - but I assume your school are aware of your situation? If not, please make sure they are informed as they may be able to help. Keep going.

  • Hi amber you sound like a lovely caring Daughter and Im sorry you and your Mother are going through all this illness.

    You are so young and you must make sure you enjoy a good life as well as the years will fly by.

    If you cant get out then invite your friends round for a chat and your Mother will also enjoy the company as well im sure.

    keep in touch in here but havent you got any relations that you can talk to and that can help you through all this.

    you need to talk xxx