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  • Blog Post: Radiation toxicity: Is there any help out there?

    Although I am not at all a fan of internet self-diagnosis, I am afraid my wife is suffering from early/late delayed side effects of the radiotherapy she had for her low grade Astrocytoma. She finished 6 weeks ago and has received a radical dose for 30 treatments. She has all the symptoms... * Early...
  • Blog Post: Somnolence Syndrome after radio therapy

    The oncologist warned us that Jane wold be feeling the side effects of the radiotherapy for probably another 5 months. He said she would notice things such as tiredness, memory loss and somnolence. We nodded and pretended to understand. We thought somnolence was just related to sleeping. Well, it kind...
  • Blog Post: Confused after radiotherapy

    It is now 2 weeks since JD finished her 6 week course of radiotherapy to the Astrocytoma in her right anterial frontal lobe. We were expecting side effects to slowly go away. Instead it seems things have just gotten worse. Maybe it is related to her being weened off the steroids at the moment? She was...
  • Blog Post: Radiotherapy Hairloss

    JD has now started to lose her hair properly. Pulling it out is as addictive as popping bubble wrap plastic! We were told it would only fall out where the radiotherapy beam hits her head and where it leaves her head again but unfortunately this seems to be almost her entire head. Hairloss was expected...
  • Blog Post: Are you excited?

    Had a strange conversation with JD that other day.Quite an emotion one for me as I failed to feel happy with the things I said. I felt guilty and a freak at the end of it. But JD is brilliant and said she understands. What was this about? Well, a rough outline is below. I think I am doing OK with all...
  • Blog Post: Treatment is cancelled for today...

    JD (or JPD as she is called here) has had 4 days of radio therapy so far and things seem to be going well. Except for this morning when they rang to say the machine is broken and there will be no treatment today. They are just going to stick one on at the end of the treatment to make sure she gets her...
  • Blog Post: Long Term prognosis

    JD has, according to the Oncologist, a high likelihood of her tumour being a Grade II Astrocytoma. Inoperable because it has invaded the Corpus Callosum and there are signs of invasion of the Thalamus. This sounds really scary when they say words like 'invaded' and 'inoperable' but how...
  • Blog Post: Always alert...or scared

    JD has been preparing for the radio therapy which will start on January 5th. On the 23rd of December, she's having her final planning appointment an then we are ready to go. She has been on quite a high dosage of Dexamethasone for a few weeks now (8mg twice a day) and she is having side effects...
  • Blog Post: Dr. Lecter is in town...

    Yesterday JD went to hospital to have her mask fitted for the Radiotherapy. Made her look a bit like Hannibal Lecter :-) I took pictures, much to the amazement of the technicians. Well, I need to be able to explain to my family what is going on right? Anyway, JD was positioned on a table and then they...
  • Blog Post: Support in Music

    I have always liked "I Run for Life" by Melissa Etheridge. It is a song about her experiences after being diagnosed with breast cancer. The song has almost become a rallying cry for women around the world, giving them hope and a sense of community, to have a major singer singing about such...