dizzywench's blog

Well I got my appointment booked for next Tuesday, thank god. Not alot of waiting to do. I shall get all the information and then make an informed decision. I think you have to stay in Leicester for the trial and its a long way from home. Nevermind, cross that bridge when we come to it. I have tried to upload a photo of my mohawk but it just wont let me so I've given up for the moment. You'll have to use your imagination…

Well hair we go again. After my wild karaoke and everyone getting used to my short hair its now falling out again!!! I am going to have a mohawk done later to do some silly photos and then its off with all the hair. I remember now how sore my head was when it fell out the first time. Its just ironic that my chemo stops tomorrow so hopefully it will start growing again in a couple of weeks. I have contacted Leicester…

Well the scan was yesterday and results today. The chemo has stopped working and the cancer in the glands is progressing!!!!! Bastard!!!! I am being referred to a Professor Stewart in Leicester to see if he can offer anything further. I feel gutted about it but I wasnt surprised. I had a feeling something was going on so I'm glad I prepared myself mentally for bad news. My chemo tablets are finished on Thursday and…

When I was first diagnosed I was given the details of the oesophageal patients association (OPA) I looked at all the details online and then filled out the online form and sent it off but never heard anything back but forgot about it mostly. I tried the hospice for support and that didnt really do it for me so chased up the OPA after some months and went to the first meeting last Saturday. It was wonderful for me, I…

Well chemo went ahead as planned last Thursday but God was I rough on the Friday and Saturday. Its the first time its effected me so bad and I was so grumpy with everyone. Not good but I dont have many bad days really. This is cycle number six of chemo and I always have a funny taste in my mouth now which is unpleasant. It makes me nibble constantly just to see if I can get rid of the taste. If anyone has any remedies…