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The Churchill was actually reasonably efficient today.
Yes, I'll give you a moment to recover before I go on.
Okay. You ready? Right:
1) Rose the Senior Chemo Nurse got the cannula in first time;
2) The chemo team had passed on my details to the line nurses, so I'm set (at least in theory) for a PICC line next week. Happy birthday to MEEEE;
3) A doctor from the oncology ward came down to find me in the Day Treatment Unit (where I was) to let me have the details of my next tummy drain instead of trying to phone me at home (where I was not);
4) We got through treatment in under four hours. Yay!
Let me rewind a wee bitty bit. Yesterday I saw the oncologist, which turned out to be Dr Nicum herself (I usually get a random registrar). She thinks I'm looking better - but then, I was practically at death's door last time I saw her, so I'm not sure that's saying much - and I certainly feel a lot better. Not physically so much, alas, but mentally; I've been in this awful mental fog for ages where I could barely speak or think or function and, by contrast, I'm now almost back to normal (not that that's saying much, and nor is it getting my book reports written; not that that matters, it's only for LibraryThing). I even came up with my very own intelligent question about what to do when we're in Manchester next week if I happen to be taken ill, which god forbid. (Answer: phone the usual triage number, but, if it's bad, go to Manchester A&E and shout "I'M ON CHEMO!" at them. I wonder if I could ask them about HIPEC at the same time ...?) However, my CA125 levels are still stupidly high, and, as you will have gathered, I need another tummy drain to get rid of a build-up of ascites. I was really hoping that the chemo would stop the ascites, but evidently not. Oh, well. It's a bugger, but never mind.
Oh - Shibani asked what we were going to Manchester for and, before we could answer, the student she had sitting in with her muttered "Bruce". That's my girl!
We also mentioned the problem the chemo nurses have been having with my veins, so she sent us off to the Day Unit to refer it to the line nurses and get the ball rolling. Which we did. While we were there, we got one of the chemo nurses to take my bloods, which saved waiting for the phlebotomist, who appeared to be on a go-slow; it was taking something like 15 minutes per person, and I reckon she was popping out for a cup of tea and a fag in between each patient. In which case, god help her.
So: consultant and bloods on Monday, chemo today, drain tomorrow, no jam ever. And my hair is falling out for the second time. FML, or not?
Maybe not. As we all know, there are - all together now - plenty worse off. And hey, at least it means we get out of the house every day.
On a brighter note, my lovely sister Penny and her husband Mak came for a visit on Sunday - eventually; they got lost a couple of times en route. My nephew Ben had been going to come too, but I'm told he was too hungover. Tsk. Penny and Mak live in Penzance, so obviously I hardly ever see them, but they'd been on holiday to Bruges (churches and art galleries, apparently) and had stopped off in Bristol, where quite a lot of my family seems to have washed up, on the way home. It was wonderful to see them, even though Penny unerringly sat down next to the one bit of the sitting room I hadn't dusted properly! My unspeakable younger brother seems to be being an ass to Penny too now - it's nice to know it's not just me, that's all. Also, they brought cookies, and also also I thereby discovered that I can eat cookies, indeed, two cookies at a time, and I call that a win.
I'm hoping that Tim will be able to come and see me too, on Friday; that's always good, and will (maybe) cheer me up after all the medical stuff.
(Then the weekend, and then back to the Churchill for the PICC line and bloods, and then back to the Churchill again for next week's chemo, still no jam. Tea break over, back on your heads.)
Right. Drain tomorrow, and they might want to keep me overnight. It's scheduled for 1.30, and they leave the tube in for six hours, so ... we'll see. I hope not, but, if they do, I suppose I can stand it. Note to self: pack the bear!
Whew! You're a regular little hive of activity, aren't you!
I'm pleased the hospital actually did something helpful today. But more pleased to hear you can eat cookies. THAT, I can relate to.
Nasty, nasty medical procedures. I don't know what lots of them are but presume they are Unpleasant but Necessary. I hope they work... If you do end up in hospital overnight, DON'T FALL OUT OF BED. I hear there's a lot of it about. And make sure you leave room in your bag for bins and meatballs and random wellwishers and other weird, Warped stuff.
I'm glad to hear you sounding quite cheerful (? tentative question?).
hugs and loves x x x
Wishing you well for tomorrow Hilary!
Blimey, a joined-up hospital? Are you sure you didn't dream all that? No, on second thoughts, your fogginess has gone, and you were able to ask Intelligent Questions. So, it really happened! Not before time but never mind, one day of efficiency is worth two in the bush or something...LM will be so pleased, it may even prevent her from crying tonight & that's going to be good for her as well as you.
So, chemo all over, just (just?) the Dreaded Drain tomorrow but at this rate it will be finished on time, then home to bed - with cookies, if there are any left. Eating two at a time may have left you short on the cookie front though. How lovely to see your sister & BIL, and a visit from best brother to look forward to. I'm glad he's recovered from his diverticulitis attack. When my mother had it she found the pain almost unbearable.
How do they drain your tummy - do they make a hole in it? (ouch). And what is LibraryThing? And who or what is The Bear?
Good luck tomorrow, take a bullet to bite on.
Love & hugs,
Glad that the hospital are at last getting their act together and things are now moving forward with your treatment, Hilary ........ I know, not as nice as Bruce but it's got to be done. Oh I do hope that you enjoy the concert in Manchester ( I'm going there soon ..... alas, nothing exciting but my check-up appointment at Christie's )
So sending hugs and all best wishes for tomorrow - don't forget your bear.
Love, Joycee xxx
Glad the hospital appointment went as it should and about time too. if you do have to stay overnight we will be there for you. Cruton's bringing the wheelie bin and also a hospital type bin with a lid on. Cruton will hide in this bin and you will recognise it because tit will look just like all the other bins, she is good at disguise. So as you pass it just say "Hello there Cruton" and if you don't get a reply you will know that is the right one because Cruton won't want to give her position away.
I'm just going to call you cookie monster xxxxxxxx
Oh and you still astound me !!!!!!!
lots of love Roobs xxxxxxxxxxxxx
Hoorah for hospital behaving like a Welsh one!! Yes, that did cheer me up curly twirly whirly and I am not crying :)
I like the sound of things happening as they should... shame it has to be things like drains and picc lines and that happening though and not more fun stuff.
A word of advice, look away when they do the picc, or close your eyes. Its ok, but not really something I would recommend watching. Oh and you can't play golf after you've got one. Damn... I don't hear you say...
What does FML stand for? I missed it... i was trying to guess, but suspect I got it wrong and I don't the moderators wil let me write my guess on here...
Hoorah for nice sister visiting and if the rest of your family live in the Bristol area, all the more reason to move over this way eh? We are near Bristol too haha.
If they do keep you in, I hope bear has got his sword with him. Though maybe a huge bow has the same effect?
You'd better not be having to shout CHEMO at the Mancunians or there'll be stern looks and words will be had. You have not had a stern look from LM yet I don't think? Not recommended. So be well and scream and have fun with the Boss.
All the hugs and spoons and love going
Little My xxx
ps Jam anyone?
Thank you, everyone! Clare, the bear is called Java. My brother got him in a gift pack of coffee and gave him to me when I first got sick, and now he always comes to hospital with me. The bear, not my brother, though that would be nice, too.
I would insert a picture, but Mac is really playing up today. Maybe some other time.
Hi hilary, why arent you in bed resting. At least I have got a stupid reason to be still up. Yep mac site is playing up tonight, very slow and lots of posts duplicated many times.
Best of luck tomorrow mate.
All the very best love jmd xxxx
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