Or emptied some dull opiate to the drains

4 minute read time.

I've been hearing how NHS cancer patients can't get the opiates they need, which is all very Bad and Wrong indeed. But I have to admit to having apparently won the postcode lottery here; my doctors love giving me drugs. I have Zoomorph, which sounds to me like a collection of animals all changing shape, and then I had something they thought was better than that - only I didn't have it on scrip, and the hospital stole it (apparently; I'm not entirely sure what happened there), so now I'm back on Zoomorph again, and I have Oramorph too. And left-over codeine. It's all good. Well, all but the necessity for all of this.

Also not good is the fact that all these drugs leave me inhabiting a twilight world all of my own most of the time. I've been in hospital for the best part of three days and had two lots of chemo since I last updated, but damned if I can remember a thing about any of it.

Judy - who was there - tells me that the Churchill was as slow, disorganised and generally hopeless as ever, and that even taking my brother along for moral support (he being a Tall Man) didn't help. But I did have a stomach drain - eventually; it didn't go according to schedule because they sent us to the wrong place. And I did have my first chemo on the ward - again, eventually, this time because I was too ill to be given it when I went down in the morning and had to have a couple of bags of fluids, an antibiotic, and the BIGGEST VOMIT IN THE WORLD, EVER before I was well enough.

Side note: I owe not only Judy and Tim an apology for making them spend all that long, boring time by my bedside, I also have to apologise to the poor Gentleman Caller, who was expecting a nice evening with Judy but only saw her for about five minutes when she drove home to let him in, and, further, got stuck in a freezing cold house because we'd turned the heating off the night before.

God knows what happened between Chemo #1 and Chemo #2. That's pretty much a blur. Chemo #2 was another masterclass in hospital efficiency - we were there for something like six hours just to get one dose of poxytaxel - but there is always someone worse off than oneself, and in this case it was the woman next to us, who was hearing-impaired - and every one of the nurses talked to her father in a "does she take sugar?" sort of way - had so many physical problems that I lost count, and I don't think ever did get her treatment.

My next chemo is this coming Tuesday, and that ought to be interesting. The appointment isn't until mid-afternoon. Given present form, I'm expecting that we'll get home sometime in the early hours of Wednesday morning.

I'm suffering from the heat at present, like everyone, but am lucky enough to have a beautiful garden where I can sit - with a garden bench (in the shade, it's okay) to languish on. Getting any sleep at night is more of a problem; I've had to sleep in the sitting room once this week already, which is all well and good but very disorienting when you wake up.

As for that bad BoyCat - remember I told you how, with immaculate timing, he'd come home with a big bite on his bum? Well, Judy managed to get him to the vet to have it looked at, but there was no way we could get near him for his follow-up appointment. He does seem okay, but I'm afraid he may end up with a permanent bald spot to mar his beauty.

All the cats have gone semi-feral in the heat, and are treating the house merely as a convenient snack bar. I suppose I don't blame them. If I thought that sleeping under the rhubarb would cool me off, I'd do it.

How do I feel? It's hard to say. Not as bad as I did before the drain; not as good as I would like to feel. Somewhere in that hinterland you will find me. Mostly what I am doing is trying very hard to eat properly. Or, you know. At all.

But I am still one of the luckiest cancer patients you will find - for values of 'lucky' and 'cancer'. See what my former colleagues/customers in the USA did for me:

 

 

Many spoons! I had to break off several times when I was reading the messages, I kept getting something in my eye.

At the moment, the only blot on the horizon is that it doesn't look as if we'll be able to change my Bruce ticket for a disabled one. I'm going to write a pleading and heartfelt email to the stadium, but I don't hold out much hope. I'll just have to hope that I feel well enough to go. It would be ironic if I couldn't, Bruce being one of the things I've been determinedly staying alive for, but we shall just have to see.

Anonymous
  • FormerMember
    FormerMember

    Hi Hilary,

    To my shame i didn't recognise your quotation so I googled it and guess what ? - your Diary of a Crabby Lady popped up 4th. in the list. So now you're famous. Among people who have to check poetic references that is.

    Chemo at your hospital sounds par for the course, except it's not a nice game of golf but people's lives they're playing with. I wonder if anyone in authority is ever actually in possession of more than half the information they need to run a competent system in a chemo ward, anywhere. At mine, they had a whiteboard on which they were supposed to write your name when you arrived at the appointed time and presented yourself. But the system inevitably broke down when the receptionist forgot the writing your name bit. That happened to me twice, and I only realised something was wrong when later arrivals were called in before me from the "waiting-room"  - a long corridor without enough chairs for the patients, and staff walking through all the time chattering or clattering with their stilettoes on the lino. Incidentally, do you recall that incident where Tony Blair was collared by an angry relative of a chemo patient, with all the press recording the incident, about the primitive conditions? You've guessed it, "my" hospital. Nothing changed.   

    My tortuous point being that hospitals aren't run to serve the patients, but for some other purpose that we will never be privy to. Most of the time - except for the surgical team and the staff on the high-dependency unit and post-surgery ward - I felt like an optional extra.  

    Anyway, you've received some super spoons which should sustain you for the next chemo session. What wonderul friends. I do hope you manage to exchange your Bruce ticket.

    Love & hugs,

    Annie xxx

  • FormerMember
    FormerMember

    Zoomorph sounds funny... and made me laugh as oramorph has the ora as in oral and when I see zoo morph I I always think oooh where do you shove that? But then again, that's me and having a tumour in your arse tends to make you a bit base in the humour dept I find.

    I am sorry you are in a drug induced daze aa lot of the time... I remember that one well, but at least mine wasn't as long as yours...

    Do email and write and do anything you possibly can do to get to see the Boss. I will write if you tell me who and where too... I'd get onto the papers and everything if needed- play every cancer card in the pack, Hilary. As you say, this is too good to miss.

    Sleeping under the rhubarb sounds kind of nice... sometimes I wish I were as small as my pseudonym. My boy cats are often getting bitten and their fur has always grown back, but as I am covered in war wounds and bald patches myself, I shall tell him he looks beautiful anyway... 

    I shall be thinking of you on Tuesday, I shall be spending the day being scanned every which way so sending some positive vibes will be a nice distraction from tubes and clanking and claustophobia and feeling like you peed yourself!

    The spoons are lovely and its nice to know that people care....

    I am enjoying having you around a little more and playing wwf of course. I think you might win, which galls me. Being ill does not allow such privilidges in my book!

    Biggest hugs to you and a lot of love

    Little My xxxxx

    ps  keep off the hemlock eh?

  • FormerMember
    FormerMember

    Hilary,

    What a lovely gesture those spoons are; it must have taken a lot of organising and it must be nice to know so many people are thinking of you at this horrible time.

    As for Judy and Tim, I'm sure no apology is needed and they wanted - sorry that's the wrong word -needed to be there where they could oversee your progress at first hand.

    Can't comment on cats, but a large rhubarb umbrella sounds just right this weather - not that I'm complaining Mr weatherman.

    I hope you do get to see Bruce and if you're not well enough then he should come to see you! If you need us to back up your claims let us know and the warped army will spring into action.

    As for WWF, you and Lm seem to collar all the best letters and I get left with the rubbish!. Do you know a word containing three i's and a u?

    Keep up your spirits and have some real welsh cwtches from me - gentle ones of course.

    Odin xxx

     

  • FormerMember
    FormerMember
    Dear Hilary Fab spoons, what a lovely thing to receive. Drugs are rather nice to receive in quantity too and though you may be rather dopey (no offence intended!) at least you are not in so much pain. My Pat got plenty too in fact I was left with quite a few bottles of oramorph which I probably could have sold illegally for rather a lot of dosh. Being a good girl I took them back to the pharmacy, probably a good thing with the way I have felt lately. As for Brucey, write, email phone do whatever it takes girl, lay it on thick. Does he have an official website? Get on there! You should not only be able to go but I think you should be meeting him! Where are you hoping to see him and when? I used to have many cats and on warm nights like this they would be off out hunting, I often used to tread on the remainder of those night time escapades, not pleasant first thing when you are still bleary eyed and half asleep! I just have to put up with a snoring farting dog now, remind me why do we have pets....oh yes we love em to bits! Good luck for Tuesday hope it goes as well as it can, don't get me stated on dear old NHS, I've got through a few soap boxes on that particular subject. Will be thinking of you. xxx
  • Hilary what a lovely lovely gift your friends have sent to you.I imagine that it arrived at a time when you most needed it.It is such a unique and special gift filled with warm and genuine good wishes they must have put a lot of thought and love into it.I haven't heard of zoomorph before must say I enjoyed copious amounts of oromorph post op but the name zoomorph does conjur up some strange images.Im sorry your in a drug haze most of the time but hopefully pain free.That hospital really does deserve an award for incompetence and I will refrain from climbing on my soap box an ranting.If there is anything that can be done to support you in getting to see the Boss then let us know we could all write letters etc of support or if there is a site we can go on or just anything that might be helpful please let us know.Cats always know the best places to go cooling off under a rhubarb leaf sounds kind of nice.i hope you soon move from the hither land to the better side and that you are able to eat and keep it down.Love and hugs Cruton xxx