Search this site
Please login to your my.Macmillan account.
If you currently have an Online Community account, you will be asked to create a my.Macmillan account the next time you try to login.
Don’t have an account? Create one now.
What is my.Macmillan?
I really wanted my lunch today. You can't imagine what a relief that was, after several days where the most I could do was choke down a piece of toast. And (whisper it) my innards are behaving a little better, though that's usually subject to change without notice.
We've found a thing for recharging my MP3 player in hospital - basically a plug with a USB port, which is only logical - so that's going straight into the go bag. Of course, all this is for a hospital stay that is now not going to happen, but it's almost bound to be useful in the future.
I had to ring JobCentre Plus this morning. I'd had a letter from them to say my medical certificate had expired. Well, no, it hadn't, my doctor signed it on 12 January for 6 months. So I sent their form back, along with a copy of the certificate. Then, on Saturday, I got the identical letter again. I decided I'd better ring them this time. After about 20 minutes of holding music hell (I am going to find a way to travel back in time and kill Vivaldi), I got through to someone. Apparently they can't accept certificates for that length of time. So I'll have to get my doctor to write me a new certificate, and then send that on. *sigh*
I'm seeing my GP tomorrow, to discuss the panic attacks and the new medication I had from the emergency doctor, so we can do the certificate then.
No other major crises. I've spoken to the doctor in charge of the clinical trial and explained to her why I felt I couldn't do it, and she seemed okay. So then all I had to do was wait for confirmation of the regular chemo - and, hey presto, I got a phone call from the chemo clinic this evening, to give me a date. It'll start on 15 May: three weeks on paxitaxol, one week off, another three weeks, and that's it. Inconveniently, that period covers both my birthday (a low-key one this year, I think) and Bruce. I may have to see if we can get our tickets altered to disabled ones; I remember how lousy I felt on chemo last time, and that was with two weeks off between treatments.
Still, I'm not complaining. You never heard a woman so happy to be starting chemo. For one thing, the sooner we start, the sooner it'll be over - and this time, we'll keep on top of them to make sure I get the aftercare I need - and, for another thing, just having a date and knowing that things are moving, might help with the panic.
Day trip to Yarnton Garden Centre today. Do we know how to live, or what?
Good luck with chemo Hilary!
I LIKE this post! I know it does sound weird in one way to look forward to chemo, but when you've been just hanging on like some kind of lemon, it's a damned relief to finally get dates!! Of course there's always an inconvenience - my hospital stay involved me missing mother's day and Deri's old school having the Closing Down Party, but at least it means we're still here to do other stuff eh? ;)
As for the jobcentre, it makes me shudder - the imcompetence I mean. I told you already about their cock-up with my claim... I mean, how difficult is it to distinguish between a MONTHLY income and a non-existent weekly one, then calculate I don't qualify because they put my monthly SSP down as weekly?? Ah bless them all, with something painful preferably.
Good luck getting them to understand the simplicity of your sick notes ;)
I quite like garden centres...............
Love 'n' Hugs xxxxxxxx
A little thing here.... :)
I remember feeling hungry one day for the first time in about 6 months. It was odd but nice. Glad you had that.
I am also glad that your chemo is starting again soon. I am hoping to go back to work on the 14th, so a big week eh? I hope it goes well and they get their arses into gear to do an op as soon as after the chemo. Or that it does a lot of good at least. And make sure you get the after care. I don't like hearing how some of you don't get good treatment and care etc. Makes me realise I've been very lucky with my consultants and hospitals. (when did I become someone who has consultants??? still catches me by surprise sometimes that one) anyway, back to you... Having cancer is shit. We know that. So, play the cancer cards and get disabled tickets and a wheelchair and the whole thing! You have got to go and see Bruce!!! and I reckon if you really milk it you might get some freebies etc. Not sure I could cope with being called a cancer victim or some such though... anyway, get Judy on the phone to do the poor Hilary routine and get it sorted.
I have had 2 dull birthdays now. Last year's was in hospital getting a bag, this year just out of hospital giving it back! I think i have exhausted the possibilities of bag giving and taking as birthday treats so wonder what next year will hold, assuming I am here for it.? Oh sorry, back to you... birthday on chemo sounds rubbish. I would get a kitten as compensation.
Don't vomit with all the excitement now, would you? Not now you have started eating more than toast.
Hope the doc gives you lots of nice drugs that keep away the panic attacks and the bed monsters.... I'm gong to get a list of things I am allowed to do on Wedneday.
My son has been introduced to the delights of the jobcentre. He got told to go away. Eventually after doing it all online, they gave him an appointment to help him get a job. He spend nearly half his money on bus fares to get there. They said, come back in a fortnight and that was it. Must be so busy playing Vivaldi to help anyone eh? Bastards.
Dinner is ready, so bye for now.
the biggest of hugs to you and so pleased that you are not so hurty and panicky. Long may it last.
Lots of love to my fave crabby lady
Little My xxx
If you have any questions about our organisation our Macmillan team would love to hear from you
You can also follow us on Facebook, Twitter, Flickr or YouTube.
© Macmillan Cancer Support 2010
what are these?