Under pressure

4 minute read time.

Funny old thing, that cancer - yes, indeed, I see you all laughing already. Here I am with a tummy full of foreign bodies doing their best to mount a coup d'état against my internal organs, but a lot of the time I don't really feel all that bad. Then - of course - I feel like a terrible fraud and a hypochondriac and a Burden on the State and lord knows what-all else.

Then there are days like today when one just wants to beg for merciful death.

That may be a little over-dramatic. Not much, though. I've had pains in my stomach - worse pains than usual, that is - for the past couple of weeks, and have been spending a lot of time curled up on the sofa, clutching a hot-water bottle. It's quite like the old days, when Lady Pains used to make my life a misery at least once a month, and sometimes, if they were feeling particularly vicious, twice.

We figured that this was probably ascites building up again. I had a lot of ascites when I was first diagnosed - that was how I came to be diagnosed, in fact - but the chemotherapy pretty much knocked it on the head. I would say I'm glad it was good for something, but actually it was good for a lot of things, for eg, getting my CA125 levels down into triple figures. I'm due for major surgery in three weeks - she said carelessly, as though she were not pooing herself at the very thought - and was hoping I'd be able to hold out till then, there's a limit to how many holes I want people making in me after all, but 'twas not to be. Last weekend I reached the "I wonder if I should speak to the Macmillan nurse?" stage, and by Tuesday I actually went and up and did it. Then I wished I'd done it sooner, as she wasn't able to get back to me until this morning. Still: I was very relieved when she did.

So this morning I packed an overnight bag, just in case, and Judy drove me up to the Churchill. Where we waited. And waited. And waited some more. We were there for just under four hours, with a total of maybe a productive half-hour out of all of it. But, eh. Better'n nowt.

Today was a bit of a triple whammy, pain-wise: the ascites, which is bad enough on its own, plus *cough* poo problems, over which I shall draw a discreet veil; plus the waistband of my leggings was really digging into my much fatter than usual tummy! Owwwww ...

The doctor, once the Macmillan nurse had finally unearthed him, had a good old prod, and I amused myself by taking bets on how long it would be after he stopped poking that my flab would stop wobbling. Sometimes it was up to five minutes. (That's a fib, btw.) They reckon there's definitely fluid in there, which is good, really - it means I wasn't wasting their time, or making a fuss over nothing, and it also means they can sort it. They didn't keep me overnight, but I'm going in on Tuesday for a CT scan and a slow drain, which will entail an overnight stay. That works out okay: I didn't really want to go into hospital just before a bank holiday, and I can cope with an extra few days' pain if I know something's going to be done about it. 

I quite neglected to tell you all about my lovely, albeit unplanned, trip to Oxford a couple of weekends ago - when I fell over and grazed my knees as though I were five, not 56 - or about Judy's graduation ceremony last Thursday - when I almost weed myself in the streets of Luton. Not that it would make much difference to the streets of Luton, which are pretty seedy, but I could do without these Tena Lady moments. I think perhaps I should stop going places. It's too hazardous.

On the insult to injury front: I have three, count 'em, three lovely Easter Eggs, one from Thorntons (it says 'Hilary' on it. Actually, the icing has smudged, so what it says is 'HilBLOBy', but, as you'll see from the above, that's perfectly accurate) and two from Hotel Chocolat. Can I eat any of them? No, I cannot. I can eat toast, omelettes, oven chips, and tinned soup, and very boring it is.

As soon as I have been drained, I intend to gorge. After which I shall again be the shape I am now, but for a much more enjoyable reason.

And now I am away, for I hear the Oramorph calling - which may imply that I have already taken more than enough. I see myself in future years rather like an 18th century poet, reposing on my fainting couch, up to my eyeballs in laudanum, composing dreary verse with which to torment future generations of schoolchildren and making impractical plans for a pantisocrital society. Which I believe means one in which everyone wears pants. And so I should think.

Anonymous
  • FormerMember
    FormerMember

    Dearest Hilary,

    I am so glad that it hasn't got to you so much that you can't regale us with tales of derring doo and all that from your fainting couch...

    I am very pleased that they are actually doing something about it, but not so pleased at overnight stays and slow drains, as opposed to slow trains which I suspect are a little more fun...

    I hope the drain thingy makes you more comfortable and the the scan shows that any crabbiness has drowned in all that fluid (ha! that would be cool if you could actually drown the little flucker) and that your Easter eggs have not smudged so much that Hibloby turns into Judy and it is no more by the tme you come back.

    How come you got 3 eggs by the way?? I have the sum total of zero eggs. I did have a little malteser bunny but he's long gone... P thinks they are a waste of money cos what you get is packing and not much inside.. haha a bit like me at the moment :D boom boom.

    Having said that, I did get a rather large box of chocs recently so think that I have overdosed on chocs this year already.

    I would like you to be betterer and home too please. Soonest you can.

    Cos some of us might cough, ahem, shuffle feet, actually worry and miss you a bit.....

    I shall send you the welcome home song on your release. Lucky you.

    Squillions of hugs

    Little My xxx

    ps I suspect Luton might be enhanced by a bit of your wee.

    pps Hoorah for Oramorph. Our true friend in need :)

  • FormerMember
    FormerMember

    Hi Hibloby!

    At last someone is doing something and yes you should have rung the Macmillan Nurse earlier, but at least you have now and something is being done to make you more comfortable.

    Good luck with the scans; I hope the results are good.

    All this talk about choklit isn't fair! True it is a goood  source of iron but I'm not allowed to buy it except for other people and that doesn't seem fair.

    I hope you are lounging on your couch in an oramorph haze composing poetry that no one understands and everyone is too scared to say anything bad about it because it may show a lack of understanding.

    Then you can regale us on here with your witty tales of your life of leisure.

    Best welsh cwtches,

    Odin xxxxxxxxxxxxxxxxxxxxxxxxxx

  • FormerMember
    FormerMember
    Good news they are doing something and not making you wait 3 weeks, that's a lot of gorging you would have missed out on. Big hug and hide that chocolate! Hmmm, you can see I'm the caring sharing type, get it from my dad, he would hide his chocs at Easter, share ours then go off to eat his out of sight!! xxx
  • Hello Hilbloby at long last they are going to do something it must be really really bad for you to have picked up that phone and ask for help.the over night stay and slow draining sounds pretty scary but if it makes you more comfortable then it has to be worth it.An oromorph haze ah I remember that it truly is a friend indeed.I hope everything goes well for you and that there is at least one Easter egg left when your up to gorging I haven't got any not even a malteser bunny guess I will have to treat myself to a cream egg.Have you noticed they are getting smaller and P is right they are mostly packaging.I remember when I was little the chocolate being so thick you had to give it a real hard whack to break it now it's paper thin ah those were the days.The very best of luck with drains and scans will be thinking of you in your oromorph haze and wishing you well looks like all our eyes as well as ears are about to bleed again LM is going to compose another song it can't be worse than Barbara or cheep cheep can it ??????..... Much love and hugs galore Cruton xxxxxx
  • FormerMember
    FormerMember

    Think we're all going to call you Hilbloby from now on tee hee.

    I thought they may have sorted you aout with a drain before Easter but if you're happier waiting till Tuesday, then i'm pleased.  Just a pity though that you'll onlyt be able to look at your eggs till later, but as you say, you can gorge out on them next week yayyyyyy.

    Hope your Easter isn't too uncomfortable, may I send you the biggest hugs and much Easter love.  And in our house easter eggs represent springtime, new life and new beginnings.  So here's to new and better beginnings for you Hils,

    Take care

    Jan xxxxxxxxxxxxx