The small picture

4 minute read time.

Sometimes, as the actress has no doubt said to the Bishop many times, it's the little things that matter. When it comes to the big stuff - oh, let us say, for the sake of argument, sitting down one day in a clinic and being told that there is a crab eating away at your insides - then it's easy: your immediate reaction is oh, is there, then? We'll see about that, Crabby, my lad! And, in fact, the big things - hospitalisation, surgery and so on - are pretty easy to deal with, if only because (a) all the important stuff is in other people's far better-trained hands and (b) one is mercifully unconscious for a lot of it.

But then there is the small stuff: you know, the stuff you're not supposed to sweat. And it is small stuff, minor, petty, insignificant; not worth acknowledging, even, let alone bitching about it. Except ... it goes on and on, day after day, and it builds up, and there's no end in sight, and ... you get so tired. That's my only explanation, and my only excuse. 

'Tired' is a big part of it, in my case; because of the problem I had with my lung, and now because of the chemo, I'm exhausted almost all the time. I can't do stuff, and I want to do stuff - even being able to focus on a book or watch a DVD would be something. I can't keep up with my friends online, and I can't go out without paying the cost for hours, even days, thereafter. Tesco might as well change its name to Annapurna.

I have a long way to go, even so, before it becomes a real problem: I can feed myself, get to the loo, keep myself clean, take my medication, and I'm clinging to that. But sometimes one gets a bit fed up of being thankful for small mercies.

And then there are the chemo side-effects. Hair loss, for one. Well, I said all along that this wouldn't bother me too much and, in fact, it doesn't - although I have discovered through bitter experience that going out without a hat puts one's cancer automatically in the public domain ("Yes, I'm doing fine, thank you ... oh, really, your sister-in-law, I'm sorry ... who are you again?") - but I'll tell you that, even though I don't think personal vanity is one of my worst failings, losing my hair would trouble me even less if I were to look more like a Pre-Raphaelite with a Romantic Wasting Disease and less like Matt Lucas with ringworm.

Fizzy fingers. They call it 'numbness', but it isn't numbness, they're not dead, they have feeling. It's just not the feeling you expect your finger ends to have. It's weird. It's unpleasant. It's constant and inescapable. And it plays absolute buggery with your typing!

Loss of taste - "You never had much in the first place, Hils," I hear you cry, and I ignore this vagary as beneath contempt. First of all, let me acknowledge that I am fully conscious of my first-world privilege in that I expect food to be readily available, and to be diverse and enjoyable. I'm not in a saintly mood at the moment. I'm in the mood that, truthfully, just about anyone would be in if everything they'd eaten for weeks tasted like garbage and stayed in their mouth, still tasting like garbage, for hours after every meal. It's got to the point where the high point of my day is gargling with Listerine - and even that doesn't last.

(There is actually a temporary fix to this that I discovered quite by accident: mint-flavoured toffees. My brother brought me some left-over Hallowe'en sweeties ["Reverse trick or treat!" he said], that's how I found that out. Toffee isn't usually part of my gastronomic landscape.)

It's a similar sensation to the one that's mentioned in a lot of vampire mythologies, where human food is dust and ashes to them. Being reminded, as I am, of Mick St John in Moonlight, on briefly becoming human, promptly heading out and gorging himself on junk food, isn't much of a consolation, but I know just how he felt.

And let us come, at last, to the pain. For several days now, I've had to break radio silence just to bitch about Mr Crab being exceptionally bitey. Personally, I suspect that this is his reaction to the fact that we're trying to KILL HIM, which is only tit for tat, after all, he'd do the same to me. But it's hard to tell what's Mr Crab, and what is only, let us say delicately, 'stomach cramps': they both bloody well hurt. How do you know when it's hurting as much as you can stand? And how would you cope if you turned out to be the girl who called 999 just because she needed a poo?

What a dilemma it all is. Luckily, I've just about run out of steam for this post. I expect there will be more in a day or so.

Other points to ponder: all of this might have been a bit more bearable if there had been, you know, daylight at all this week. It's so bloody No-vemberish that I can't even.

And it's also possible, stupid as it may sound, that I'm suffering from post-chemo depression. For three weeks, everything builds up to chemo: then, six hours, and it's over, and you're left with another three weeks of ...

... well, of nothing, really. Or of very little.

Which is where we came in.




Anonymous
  • FormerMember
    FormerMember

    Hiya Hilary,

    Oh the joys of losing part of your lung, chemo, Mr Crab! As they say, been there, done that, got the t-shirt....oops wrote t-shit....forgot I'm not on warped!

    Have you tried pineapple to make your mouth taste less foul? Think the reason I'm putting on weight is 'cos I've got a couple of years of crap tasting food to make up for....and hubby was great at making lovely looking meals too!

    Tired, no concentration, can't be arsed......was still suffering that earlier this year, and my consultant said that I needed to give it time as it was only 2 years since I'd finished treatment. HOW BLOODY LONG DID I NEED????? When I was ill I used to have the same problem, do one thing and then I had to rest the remainder of the day, and it is so frustrating being so useless, and unable to do much apart from tend to personal needs.

    It is supposed to be so inspiring to read about these people who climb 10 mountains, walk round the world 20 times etc. but I used to feel even more useless as I couldn't even get to the end of the road. Hubby used to say that I couldn't climb mountains pre-cancer, so what made me think I would after!

    Music was my salvation.....don't know if it would help you....listening, or banging on a few saucepans to get rid of frustrations. That should keep the neighbours happy :-)

    Have a good moan, cos its good for you to get it off your chest. And we're always here. You listen to us in the same way as we will always be here to listen to you. Hopefully weather will brighten up this weekend. Its definitely 'head under duvet' weather. HIbernation is called for.

    Big loves and hugs xxxxxxx

  • FormerMember
    FormerMember

    Hi Hilary,

    Thank you you have solved my problem that I have had for the last 5 yrs. Fizzy Fingers have been the bain of my life. As you say when you are typing cutting your nails trying to touch or feel. Its the most annoying thing. At least now I have an explaination for it. Thanks a lot.  Look after yourself and your Fizzy Fingers.

    Take care and be safe Big Hugs Love Sarsfield.xx

  • FormerMember
    FormerMember

    Hello Hilary,

    Sorry that you are not feeling too good yet ....... afraid our journies are more of the long-haul type rather than the short-haul hops. Yes, I also found that the ' big things ' like the surgery / hospital and so forth were a lot easier to handle than the ' small things ' that they claimed would ease in a few weeks or months ( eg side-effects from the radiation ) Consultants tend to change their minds on healing times - it  depends on who you get to see at the follow-up appointment .......... however, I really didn't think that it would take years to recover.

    The tiredness is certainly, well ......... tiresome ! Just a thought regarding your Tesco shop, have you ever considered ordering your groceries online and getting the Sherpas to deliver it to your door ? It would make life that little bit easier for you, Hilary ............ no need for the ice pick and crampons.

    I'm sure that your taste buds will eventually recover - but keep trying somethings different, like a sharp tasting fruit , eg grapefruit ( or a Vindaloo - that will beat the Listerine ? ! )

    I think that Stinker is right about Hibernation time as I am always happy to snuggle under the duvet early during the dark evenings ......... read a book or watch a bit of TV if I can stay awake ! But don't forget that the tiredness is Nature's way of telling you to get the rest your body needs in order to recover - so do just that and look after yourself, Hilary.

    Love, Joycee xx

  • FormerMember
    FormerMember

    Hi Hilary,

    You are not alone.

    It's the weariness and inability to concentrate even on the most mundane things which get me down and I have had an easy ride compared to you. People have told me it will take six months to recover and I'm frustrated after just two months.

    I find watching TV helps me sleep - in the chair!

    Excercise is supposed to help, but I've found my energy getting less lately, and with this wet weather my arthritis is beginning to play up!

    Thank goodness for warped, if I don't fall asleep at the computer at least it raises my spirits.

    Sorry to whinge on your whinge but I'm too tired(=lazy) to write my own.

    Odin xxx

  • FormerMember
    FormerMember

    Hi Hilary, Warm hugs and nice thoughts heading your way.... I have no idea how the fuzzy fingers must feel as my chemo has yet to start, but I do know that you are among friends who really care about how you are feeling and if magic wands really worked (not the Harry Potter kind!) would wish all your crabby crab crabs would turn into floaty butterfies!!!!!   Damn I think that I took too many tablets today but the sentiment is heartfelt

    Amanda xxxx