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This is where you can find out about all the amazing things going on in the Online Community. It's where you'll find news about events and awareness months; ways to get involved with Macmillan and up-to-date campaigning news from Macmillan HQ.
Back in November 2012, Macmillan gave Cancer Voices the opportunity to ask parliamentarians
questions about cancer care and services at the House of Lords.
4’s Jon Snow chaired
the panel, which featured Baroness Morgan, Verindra Sharma MP, Baroness Jolly and
Macmillan’s very own Chief Medical Officer, Professor Jane Maher.
Parliamentary question time here>>>
panel tackle questions about...
The future of cancer
Carers & benefits
The role of cancer
The next Macmillan Parliamentary Question Time will take place
on 11 September 2013. And we’d really like Community members to get
If you’re interested in taking part in this year’s Question Time,
find out more about becoming a Cancer
Voice. There are lots of different ways you
can get involved, and use your experience to help people affected by cancer.
also follow the Macmillan public
affairs team on twitter, to keep up to date on how the team is working with
parliament and decision makers to improve outcomes for people affected by
Thanks very much for your post. I am sorry to hear about your diagnosis, but I’m truly inspired by how defiant you are.
Macmillan agrees with you that more needs to be done to save the lives of people living with lung cancer. That is why we have campaigned for a number of years for the whole NHS to be measured against how well they do at improving cancer survival rates. The good news is this is now happening.
We also feel passionately that the NHS must provide everyone diagnosed with cancer with the best quality treatment, care and support no matter who they are, where they are from or what cancer they have. So in 2009 and 2010 we lobbied hard for the Government to create the Cancer Drugs Fund. The Fund was set up in England over two years ago and is providing thousands more cancer patients with drug treatments that can help control their condition.
You might want to talk to your oncologist about whether there could be any drugs available through the Fund that could help to treat your cancer. For more information about the Cancer Drugs Fund, you can go here: http://www.macmillan.org.uk/Cancerinformation/Cancertreatment/Gettingtreatment/Accesstotreatment/TheCancerDrugsFund.aspx
Cancer Research UK has a lot of information about research into new treatments for lung cancer. You can find out more by visiting this page on their website: http://www.cancerresearchuk.org/cancer-help/type/lung-cancer/treatment/whats-new-in-lung-cancer-research
If you would like to challenge politicians to do more in the fight against lung cancer please do think about whether you might like to come along to our Parliamentary Question Time in September.
I am afraid I am a pragmatist when it comes to cancer. My lovely husband was fit, active, healthy eater and a non-smoker. It was he who ensured I got my fruit and veg every day. All veg were steamed and we used very little salt. When he was diagnosed with cancer he was determined to fight it and had such a positive attitude. He had chemo then radiotherapy then more chemo and took it all without complaint. Sadly he still died 18mths after diagnosis.One thing I would say is that GPs need to be more aware. He got quite angry with me when I kept telling him to go to the doctor and NOT to settle for antibiotics of a nice cough bottle. I was worried about his cough and thought either cancer or TB. The outcome may have been different had it been diagnosed in time for surgery to be done.
carolab has summed up my experience too. I kept telling Laing his chest pain wasn't down to the way he leant to one side in his office chair. Little did I know then what it was. Although the doctor sent him to the hospital I don't know if (s)he knew he might have had cancer of the lung. Our problem is that the word cancer still has the power to paralyse us into inaction, whereas it should be the spur to action.
Things aren't helped when a certain tabloid newspaper prints stories one day that eating chocolate will give you cancer and then the next saying if you eat 50 g a day it is good for you. We need serious journalism to back up serious political decisions which don't look at the cost of treatment, but the off ledger costs, some of which are not easy to quantify in financial terms. When governments penny pinch (and I don't just mean this one, I've seen enough in my time) they go for the easy option, and those with terminal illnesses are the least likely to cause trouble, in the short and longer term. Cynical, I know, but I never trust the decisions made.
I listened to the discussion about Rarer Cancers.
The gateway for care is the GP. There are good GPs and there are not so good. GPs need to have better training, awareness and a willingness to keep up to date. You can commission all the research you like, but in an overstretched poorly performing NHS, I wonder what difference it will make. I happen to live in a supposedly well serviced area with hospitals with supposedly good reputations. The staff are still working at full stretch and thus unable to devote the time needed to terminal patients.
And remember, men and women treat disease differently. Women tend to look after themselves, undergo regular health checks, attend regular screening etc etc Men's cancers are not as 'sexy,' don't get as much money chucked at them. Ok - so finally something is being done about Prostate Cancer. But men don't generally talk about their pain, their worries about their health etc And I was married to a South Island Kiwi - they're the worst. When my husband said he was in pain, boy, his pain was off any normal scale of measurement. No wimpy Pom was he. So in that sense, men can be 'their own worst enemy' where cancer diagnosis is concerned. Yet....... yet still, the GP has the duty to take seriously worrying symptoms, to question what is going on, should we maybe have a scan here?
I truly wonder what changes you expect in a Health System which is struggling to work on a day to day basis. There simply isn't the money, nor the staff to produce the kind of change we need. My late husband was fortunate in having good care in our local hospice for the last 3 weeks of his life. That hospice is funded by a lot of charitable donations. It couldn't keep going otherwise. So please tell me how you think all these well meaning bits of research will effect the very necessary changes needed to improve the lot of rarer cancer sufferers.
And please tell me how the ordinary 'Man in the Street' and his family cope when faced with a diagnosis of rarer cancer. Forgive my cynicism. I am a realist.
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