Last month we had a web chat with Rosemary, our new local campaigns officer, where you told her what your biggest issue is.

The record of all of your issues is below, and Rosemary will be hosting a series of three monthly surgeries to teach you how to campaign at a local level to affect change. Please see my last blog post for more information on times and dates.

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As far as I know apart from this site there is no after cancer support for us considered 'cured'. There are some self-help groups, but since they are outside formal GP/hospital/etc cycle, is very difficult to take time off work to attend. The latest in my area finishes at 16:00.

I was diagnosed with lung cancer five months ago and have still had no treatment for the cancer nor the symptoms I have. There seems to be nobody qualified to give me my results and when my GP sent me to hospital for symptom control they sent me home after telling me it's all part of my condition and I basically have to put up with it.

I don't think some GPs care enough. I think my pal might have stomach cancer but I haven’t told her anything about my concerns. Her Dr. has referred her for a scope and she finally got one on 9 September, the waiting times are so long for these things.

Waiting for results is my biggest issue. I had to ring around the hospital to find my ultrasound results last year. A nerve-wracking experience!

My problems: waiting times - three weeks until my clinic appointment even to discuss chemo? Lack of cohesion at the hospital - I have a pleural effusion as well as cancer, which seems to be being ignored; and money worries.

I am concerned about the lack of support for cancer survivors. I am a survivor myself and would benefit from support and the opportunity to meet other people in the same situation.

I had a kidney removed in July with an aggressive tumour and was sent home 2 days later. I saw a consultant who didn’t say much, just ‘we’ll scan you again at Christmas.’ I feel alone, scared and depressed but my GPs just say it takes time.

Obviously it’s important that funding for support is provided for people going through treatment. But there are now a significant number of people (and thankfully this is on the increase) who are surviving and left feeling isolated and in the dark, to deal with feelings, flashbacks, physical difficulties and money worries not to mention a lack of confidence.

Face-to-face support is what's needed. For example, I saw my sister-in-law yesterday - she told me when she was sick, sometimes she could only eat chipsticks. Made me feel a whole lot better about my own eating problems!

I believe one of the biggest issues I have had since my diagnosis is the wait between diagnosis and treatment. I understood that quick response to cancer is key to recovery.

The biggest issue we have might seem strange to some of the posters, some people do not want to be deluged by too much information, it actually made us feel overwhelmed and even more frightened by everything that was happening with my husband’s leukemia. I think at the beginning the doctors need to find out if you want so much information or you should ask if there is something if you need / want to know, as we are all different.

I didn’t ask for cancer and now have physical problems as a result. I still feel like I’m constantly made to jump through hoops and the stress it causes is overwhelming.

I find that people struggle to understand and comprehend how I feel and think that four years on I should be 'better,' 'over it' and have put it to bed now which is so far from reality.

I find travel a problem being a pensioner. I find it expensive to drive the 60 mile round journey to hospital and as I live in a village with limited transport I have no option but to drive. We are just over the threshold for financial help but going as often as we do it is getting so expensive.

Hospital car parking is my biggest issue.

Following a cancer survivors course online I started a website for the members who take part and this makes such a tremendous difference - to be able to chat with people who REALLY understand. I wish I could do this more frequently and face to face close to where I live.

It’s such a pity that most of the courses etc are in London.

My course was excellent. I was on the first of the pilot courses and enjoyed talking to people but found the downside to be that no ongoing contact was offered to set up my own site to enable members to keep in contact.

I feel really bad for saying this because thankfully my husband was treated successfully and has been in remission for 5 months now. But its now that we are struggling, we are like strangers and it’s really hard.

Its long term support that I have issues with. I’m 6 years post treatment, no longer under a consultant and feel out of the loop financially and personally.

I have melanoma and after a neck dissection was told I needed radiotherapy. I was also told that they would make an appointment to see about trials. When my appointment arrived I waited 2 hours to be told that as I had radiotherapy I wouldn't be eligible for trials. Surely they should have known this before making me an appointment?

We all, irrespective of cancer type, treatment or prognosis - are let down by a system which focuses almost exclusively on the clinical aspect of our cancer. The clinical aspect is important but we need a bit more and - ideally - we, as patients and carers, should be supported and empowered to do more for ourselves.

Please see our campaigns section for more information about any of our campaigns, and ways that you can get involved.