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I want to introduce you to Rosemary Frazer who is our new local campaigns officer.
It will be her job to make sure that the things that matter to you in your area are being given a voice.
In the spirit of sharing, Rosemary will be in the chat room on Thursday lunchtime asking ‘what’s your biggest issue?’
She wants to know what’s annoying you about cancer treatment, diagnosis, care or support in your area to get a good idea of the different problems facing people from around the UK.
So if you have an issue that you’d like Rosemary to know about, please come along to the chat room at 1pm on Thursday 25th August and let her know!
Thank you Rebecca,
If I am able to take my lunch break at that time, I will join Rosemary in Chat on Thursday.
Thanks Rebecca, hope to make this xxx
If I don't would like Rosemary to take on board perhaps a new Campaign re Life Insurance as I feel that companies need to come into the 21st Century due to treatments and people living longer and us not to be treated as if we are on our death beds etc, so the premiums either go sky high or no insurance can be got.
Cheers Donna xxx
Thank you Rebecca
Hopefully I can take my lunch break at 1:00 tomorrow. My biggest issue is post treatment care. After all these appointments suddenly there is no one person/organisation (apart from Macmillan!) to answer questions, provide practical and emotional support of the side effects etc.
Hello, thank you for your comments Donna and Georgia and I hope that you both and Rose can find time to join in the chat tomorrow. I am quite new to Macmillan and will be supporting people at a local level to campaign for the things which are important to you and although we already campaign with you on a wide range of issues, I would be particularly interested in hearing about things in your areas and then we can put together some ideas and plans on how to work on them together.
My BIGGEST issue is the amount of time between initial scans and diagnosis. It's usually weeks of worrying and your mind going through the worst scenarios until you get your first consultation. Too much time wasted when you could be started treatment against this evil disease
My big issue is that, having survived the treatment and the side effects, as a carer I now support us financially but feel lost and do not feel there is any support out there - it all stopped with the treatment ended and no-one mentions how isolated you feel as "friends" no longer understand why life has not changed back to your "old" life and you simply feel drained trying to look forwards most of the time.
Our support line are available to talk to on 0808 808 00 00, Monday to Friday, 9am to 8pm, or you can email them if you prefer. Although this information on life after cancer isn't strictly for carers, I hope it is of some use.
If there is anything we can do please get in touch,
If you have any questions about our organisation our Macmillan team would love to hear from you
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© Macmillan Cancer Support 2010
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