Cancer isn't fair, but your boss has to be

2 minute read time.

Each year almost 120,000 people of working age are diagnosed with cancer in the UK. In 2012 I was one of those 120,000. 

I’d been in a new job for six months when I was diagnosed with cancer. On top of coming to terms with the diagnosis, learning about treatment options and side effects, and breaking the news to family and friends, I was also worried about what would happen to me at work and how my employer would respond to the news of my diagnosis. 

I was lucky. My employer was really supportive and encouraged me to take the time I needed for treatment and recovery. Some of my work colleagues kept in touch by text and email and the HR team emailed me regularly to check how I was. I was really grateful for the support: it helped me cope with treatment and rebuild my health and fitness after treatment. 

Work and cancer 

Not everyone gets that sort of support. Almost half of people living with cancer who were in work when they were diagnosed (47%) say their employer didn’t discuss sick pay, flexible working, or making workplace adjustments when they told them of their diagnosis. Almost one in five people who returned to work after their cancer diagnosis (18%) say they’ve experienced a lack of understanding of their needs from their employer or work colleagues. 

And 57% of those of us who are cancer survivors, who were in work when we were diagnosed, have had to give up work or change our roles as a result of the diagnosis. While 60% of us living with cancer, who returned to work after diagnosis, went straight back to our normal working hours. 

Fair treatment 

Many of us don’t know what our employment rights are, or how to make sure we’re being treated fairly at work. A YouGov survey in 2014 found that less than 50% of people diagnosed with cancer knew that cancer is covered by the Equality Act. But Macmillan’s campaign, Cancer isn’t fair but your boss has to be, aims to make sure people affected by cancer know what their rights at work are, and know how to get the support they need. And there isn’t just support for people with cancer. If you’re a carer, a work colleague, or an employer, you can get information. We all need to make sure change happens and people affected by cancer are treated fairly at work. 

Get involved 

If, like me, you want to help Macmillan demand better outcomes for people affected by cancer, you can sign up to be an e-campaigner and keep up-to-date with Macmillan’s campaigns on the campaigns blog

Anonymous
  • Great Post Freya, and something which does need 'airing' every now and again.

    Just to add a couple of links as further reading -

    Macmillan has a Work and Cancer Information Page

    Also there is a range of Macmillan Booklets covering aspects of employment from working with cancer, and those self employed to carers with full time jobs. Some are downloadable, others available to order.

    Know what your entitlements are and If you don't lay down, you can't be walked all over :-)

    Take care, George & Jackie (breast group)

  • FormerMember
    FormerMember

    Thanks for your comments!

    Working during cancer, getting back to work after cancer, or explaining career gaps because of cancer is something I think more of us are going to be dealing with - and employers are going to have to get better at dealing with this too.

    George and Jackie: thanks for the links to Macmillan's work and cancer webpages. I put links in my blog but they've got lost along the way so I'll try to put them back in.

    JayPee: I'm sorry you've had such a tough time but it's good to know your union is supporting you. Have you spoken with anyone from Macmillan about your situation? They might be able to offer advice or support?

  • FormerMember
    FormerMember
    Hi Freya, yes I did call Macmillan a while ago. I'd say it was the one time Macmillan was not helpful. The person I spoke to just told me to call ACAS. Fortunately I know that's not typical of Macmillan, just getting rid of you. Maybe I got someone on her first day?
  • FormerMember
    FormerMember
    How about when you are the employer who has cancer? Doesn't seem to be much support for us...
  • FormerMember
    FormerMember

    Hi Helen2410

    There's some information here about self-employment and running a small business. This might be useful for you? If you need more or different support you could call the Macmillan Support Line (0808 808 00 00) and find out if one of the advisers could help you. I've found the Support Line really useful to get information and advice on a range of issues.