Hiya All,
I have some sad news I'm afraid and I feel absolutely gutted. My mums appointment was today and her blood tests have shown the bloody leukaemia is back.
Well I knew it might come back one day, but to be honest I didn't think it would be so soon.
The consultants are getting together within the next few days and they are going to decide what to do next.
At first the doctor said it could be a matter of months rather than years that mum will live. But he still said they will treat her and try and get her in remission again.
They won't give her a transplant as her age is against her (67), and they also think it's too risky.
I know they do them in the USA for people older than mum.
I feel so sick and poor mum was crying on the phone when I rung. She didn't want me to fly back home as I am away on hols, she wanted me to enjoy our holiday. Yeah right, I can't now.
I know loads of people relapse and get back in remission, but the dreaded disease is so powerful it takes over.
Strange thing with my mum is she feels perfectly alright, but the blood tests showed 18% of blasts in her blood, and her white cells were up and her neutraphils were a bit low. Her platelets were fine and she didn't need any blood.
Anyone know what might happen next.
Should mum have done all those things so soon after achieving remission since Jan 09
Belinda xx
FormerMember
Belinda, I have replied to your PM.
My heart goes out to you and your dad.
Nothing your mum has done or not done has caused this relapse - and I am so pleased she feels OK. She will need her strength, courage and the support of your family to fight back. We will support you here.
i am so sorry to hear about your mum, i used to read all your comments about what was happening and she was doing so well. my dad has finished his consolidation and has been given chemo tablets as maintenance therapy but his stopped taking them as they make him so ill, now im hoping there is some other tablets they can give as his got a review tomorrow as this horrible disease seems so strong i need him to do all he can, did your mum have to take any tablets at all after she had ended consolidation, dad has aml m3 which is treated differently to the others. My thoughts and hopes are with you and your family. please keep us updated. shelley. x
I'm in Spain at the moment and since I found out today I cannot think straight. I feel all alone in a foreign country and so sad. I know my husband is here with me, but he doesn't know what to say, only to be there for me.
I fly back late Saturday so wil be popping over to see my parents.Aparently my dad cried all the way home from the hospital (1 hours drive) he was so upset.
I am trying to believe she will get in remission again, and this time for a lot, lot longer.
She only had one induction (Trial AML 16) and two consolidations and that was it.
She never needed any new blood for ages, and she finished treatment in feb 09.
Since then mum has been wonderful. She never got out of puff, she got back driving again, she went to bingo, she went shopping, to the pub and walked 7 miles.
Ok sometimes she felt a bit tired but that was all.
So we are shocked to find this out today. They say it showed 18% blasts just by doing a blood test,no bone marrow was done today and hasn't been done since Feb ish....
We are keeping our fingers crossed that something new will come up and mum can try the latest treatment.
Docs are meeting on Monday and mum is to go over wed.
As a fellow AML patient, I really feel for you & your family. It could be anyone of us! Please tell your mum to keep positive, I'm sure alot of this is down to attitude of mind. That said we all feel we have a little black shadow standing just behind us, not knowing what they will find wih the next set of tests. I hope they come up with something positive for her.
