Day 16 of dad's first cycle of sutent. Last night dad in A&E because had to call ambulance after collapsed on lounge floor. Couldn't get himself out of his armchair and then fell. (Apparently been in bed for two days, hardly eating and extremely weak for last two days). Managed to crawl on floor to perch himself on sofa. Docs took blood, urine & chest xray. Advised him had infection/high fever and started him on antibiotics intravenously (plus cancer specialist subsequently asked for another type of antibiotic to be given in addition). He was admitted to normal ward to be monitored.
Visited dad on ward twice today. Still high fever and shaking/shivering. Doc advised will keep him in hospital to Monday. Cancer specialist said infection probably caused by sutent but doesn't want to just assume that so still awaiting test results. Dad told not to take sutent today but will prob start again tomorrow.
Friend recommended occupational therapist. Nurse will refer him so that they can assess what needed from safety/mobility point of view whether can help give suggestions for doing everyday tasks to make things easier for him & mum at home. Mum opposed to any mention of "props" (e.g. bed handle, toilet surround handles, cane, electric rising chair, handrail for front doorstep) for him cos I think she sees them as an "end" solution/much later down the line - but to me seems sensible to keep him safe etc.
Wondering whether to ask specialist whether he will scan dad again (he can't have MRI because of pacemaker) to see if any changes since diagnosis or what plans are.
Does anyone have any similar experiences/suggestions? Many thanks and kind regards to all.
