Too bad to blog

2 minute read time.

Sorry to everyone to whom I have failed to reply or respond recently. It sounds counter-intuitive, initially, but the side effects continue to get worse after treatment stops - in my case exactly one week ago - and I just have not been able to reply to anyone about anything. The nature of the treatment especially radiotherapy, is such that it continues to roll on inside you even after the input has stopped. Think radiation sickness, Chernobyl, Fukushima .....  

My neighbour, who has been through this, warned me that the two weeks after treatment would be the hardest. He is right but boy, I did not think he was going to be this right. This is the first day I have felt remotely able to write anything, even short. Great that the treatment is done, and in a way I guess I had to focus on getting it done and not think too much about afterwards, but it is dawning on me now that the road will be a lot longer than I thought.

When this whole business started, a breast cancer survivor said to me two things that really stuck with me.

Firstly, she said "This is going to be the hardest fight of your life." Er, yup...

Secondly, she said that the way to envisage the treatment was maybe like climbing a mountain: sometimes it seems hugely steep and just insurmountable, but you just focus on keeping going, step by step, not on the totality of the ascent. So in my mind I said completing each week was like getting to the next camp on the way to the summit - and there was even a little break each weekend to help that feeling that you had arrived at the next camp. But the analogy can be taken further.

After reaching the summit, you have to get back down. (In mountaineering, ascents do not count unless you get back down alive.) And whilst you have achieved the summit, you are exhausted and descending is not that much easier than ascending. It is still cold and the air is still very thin and you do not feel better at all, in fact you feel worse. All you know is that you have to get keep going and get down to an altitude where you can breathe more easily and feel the warmth of the sun. Depending on the weather, you don't know whether this is at camp 4, 3 or even 2 on the way down. You just have to keep going.

Anonymous
  • Hi there,firstly well done for getting through your treatment,you have done so well.

    I had anal cancer and I'm now 15 months post treatment.my oncologist told me that the next 10days after finishing g treatment would be the worst days and gave me morphine.how right she was,it was the lowest point of all but it doesn't last ,once the healing starts it gets better.

    Just wanted reassure you that there is light at the end of a very long tunnel.look after yourself.

  • FormerMember
    FormerMember

    Hello Cymru, as the saying goes " been there, done that and got the tee-shirt " ... yes it does take some time for the RT to ' peak ' before the healing / recovery begins. I recall one of the RT staff telling me that they will make me worse better - he was quite right !

    It can indeed seem like that proverbial endless tunnel, but there is a light at the end and you will get there ... pop over and join us in the head / neck cancer group.

    Joycee x

  • FormerMember
    FormerMember

    Well done Bud, you have got through this terrible treatment. Radiotherapy does carry on working for some time once you have finished treatment, but everyone can react differently. I was pretty bad for about 10 days, then everything started to heal. Each day you will notice little improvements. It feels like forever, but you have to dig deep into your inner strength. Hang on in there, things will suddenly start to get better. Sending you lots of healing strength xxx

  • FormerMember
    FormerMember

    Totally feel for you going through this. You sound like you have endured it quite stoically however and should be really proud of that xxx

    i hope that the treatment has done it's job and that you are able to move forward.

    Your friend is very right about the journey back down, i guess it is something many are either unable to envisage or think about until it faces them.

    Hoping for a good descent for you xxx

  • FormerMember
    FormerMember

    Hi I had an awful reaction which lasted for 10 days, started to wish I'd never had it! However I saw lots of different doctors who all tried to help with the pain. A nerve had inflamed. 6 weeks on from the end of my rt I am almost pain free!

    Best wishes

    Julie