3rd dance with germ cell cancer

  • Hmmmmmm

    FormerMember
    FormerMember

    Well this is a turn up, and very stressfull,i had my scan ,blood tests at the royal marsden 1st may, 6 weeks after my preop scan and three. Weeks after my op

    well the scan came up with the best results my consultant had hoped for,  yes still two growing nodules/lessions/tumors in my left lung, but still small

    and clear right, and two decreased tumor markers, we discussed the st barts option and i was advidsed to hold off…

  • What to do

    FormerMember
    FormerMember

    so, after 6 months of nagging the royal marsden finally referred me to st barts, i had my consultation and they are willing to treat me using IPO chemo

    trouble is this only has at most a 20% CR rate, which is i must admit more than i have at the mo, 

    they willing to start treatment in a weeks time, which is very fast, and slightly annoying that the RM have toyed with me for. 6 months,

     

    so do i try it knowing it may mean…

  • Cant get a flipping break

    FormerMember
    FormerMember

    i cant get a flipping break from this dam disease, not one smegging day, i was diagnosed in july 2012, with this oh so treatable disease, oh yes my tumors has dies, even become undetctable to known scans, but my tumor markers which come down during chemo, start rising the minute chemo stops, never below ten, never a day of remission, not even one in nearly three years, even people that have died of this disease get a…

  • I actuatly dont know what surgery im having

    FormerMember
    FormerMember

    ive just relised  i dont actually know what surgery im having, im aware i have smallish tumors in each lung, less then 1 cm, and one diseased chest node,

    i know i ve been recommended for chest surgery, but in which lung, and will he b taking my chest lymph node out as well, i hope so or whats the point,

  • Should i complain

    FormerMember
    FormerMember

    ive been thinking about this alot, not so much for me , but for my wife to get closer if/when i die of cancer,

    november 2014 , i was told nothing show on the scan come back in 7 weeks and hopefully we operate for a cure

    5 jan, just one site in your right lung we operate for a cure

    jan 29 we need to make sure thats all wait two months we operate for a cure

    feb 15, blood tests and xray show no real progression hang on 6…