Macmillan's Online Community

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Forum Post: Re: I am itchy and your thoughts please.

Posted by Jannie
Posted 2 months ago

Hi Sonya - welcome to the site! Personally I find that it is best to say to anyone who asks, as my consultants have told me "it is to be seen as a chronic illness, like high blood pressure, diabetes, etc; which can be managed, at the moment I'm in remission, so thinking positive". I...
Forum Post: Radiotherapy/or no radiotherapy that is the question...

Posted by shaz301
Posted 2 months ago

Hi Guys and Gals would like your opinion please after 2 consultants telling us RT would not help, a 3rd consultant has said yes and signed Malc up straight away...... What do we do he is going along nicely on HRT psa going down, side effects managed as much as can be....I know this won't cure...
Forum Post: Brain surgery recovery time? Please help.

Posted by sophie90
Posted 2 months ago

Feeling a little helpless at the moment. If anyone could give some advice or insight it would be much appreciated. My mum was diagnosed with oesophageal cancer in summer last year, she was told it could not be operated on and was receiving chemotherapy. Just before Christmas she was rushed into hospital...
Forum Post: Radiotherapy V Nerve Blocker

Posted by JIngarfield
Posted 3 months ago

Hi there - brief background: on 26th Sept last year my darling Mum was diagnosed with primary liver cancer (HCC) which has spread to her sacrum, spine and lungs. The secondary tumour in her sacrum area has, right from the start, caused her ALL her pain, and has already been treated with a course of Radiotherapy...
Forum Post: help

Posted by cjc11
Posted 3 months ago

I am going to have radiotherapy in 2 or 3 months time it will be at the QE hospital in Birmingham,i live about 8 miles away , is there any free transport i can get as i will have to go 5days aweek for quit a few weeks. Prostate cancer gleason 7 spead to lymph nodes and lung, but not bones i am on...
Blog Post: side effects from palliative brain radiotherapy 2 weeks ago. Now has infection/hospitalised.

Posted by jonpo
Posted over 1 year ago

Anyone had any similar experiences / advice / help on questions I should be asking doctors on behalf of family? Father has Grade 4 kidney cancer (has tumours on his one remaining kidney, on the kidney bed site of kidney removed 15 years ago, tumours on lung & one on brain. Sutent is controlling kidney...
Blog Post: My Mum - Denise Leahy

Posted by Sosanna
Posted over 1 year ago

It's shocking the decline in my Mum's health. Yesterday she was so weak even her voice, i really thought she was dying!! She kept saying she was cold even though her flat was hot. She's hardly eating or drinking. Perhaps it's the side effects of the RT. She was too weak for chemo but...
Blog Post: Christie consultation ( on Wednesday, July 1, 2009 at 7:52pm )

Posted by LesleyK
Posted over 1 year ago

Quick note - Tuesday 30th June met with Dr Soe who was lovely. He explained my treatment to me, 5 and a half weeks worth. Timescale - 1 - 2 weeks I will have another CT scan (ohoh Gastrograffin not agreeable at all!) At this scan they will tattoo me, (unfortunately I don't get to pick a design, just...
Blog Post: Week 5 of Radiotherapy

Posted by PeterHorsted56
Posted over 2 years ago

I have had 7 months of hormone therapy, 8 weeks of Bicalutamide then on to Prostap injections 2 weeks before finishing the Bicaluamide. Also on Cyproterone Actetate tablets and Taladafil. I actally fely great before starting the Radiotherapy, to the point that I alsmost forgot I was ill. I was not quite...
Blog Post: End of treatment

Posted by dmwcarol
Posted over 2 years ago

I made it through 27 fractions of radiotherapy before my hand got so bad they had to stop. It's not the full 60 Gy we were aiming for, but 54 is not at all bad. My lovely oncologist said that most people don't get past 40 Gy with this sort of electron radiotherapy so my 54 shows that ...

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