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  • Blog Post: Radiotherapy/ starting the final week

    As I lie here awake having had my 2am Oramorph dose I've been thinking through how I've been feeling over the weekend and trying to understand/ deal with things a little better. First of all I think I've been a bit in mourning for pre diagnosis me. I watched a video of a holiday with friends...
  • Blog Post: Radiotherapy- 4 to go

    Into the final week. This seemed so far away at the start I can't believe I'm here now. Had the consultant meeting yesterday and although if lost a tiny bit more weight she said overall she was very pleased with how I've done on the food/weight front and that it's brilliant that I've...
  • Blog Post: Radiotherapy - Day 29

    After having felt pretty similar for the last 3 weeks, after my original early dip, last night saw a decline and a pretty awful night. My tongue has felt much larger during the night and the paracetamols seem to really sting and burn my mouth when I take them. They do seem to be a different brand to...
  • Blog Post: Moving on - post RT appt 10 Sept 2014

    Saw my medical team on September 10th. Now, 100 days after finishing radiotherapy and 10 days after finishing hormone treatment, my psa is still unreadable. No side effects worth reporting, night time urinary visits steady at 2 to 3, I*m really feeling good. Only need is to exercise more to reduce feeling...
  • Blog Post: 1st Day without radiotherapy

    Today is my first day without radiotherapy, it feels such s relief not to be getting ready to trip of to the hospital although I do feel a bit lost without all those people around. The main thing that's changed is the increased mucous/ thick saliva that's being produced. There's a lot...
  • Blog Post: 1 week into Recovery

    So I had my last of 30 sessions of radiotherapy a week ago last Friday. The past week has been a bit of a struggle, the worse thing being the sudden onset of the Phlegm monster. I can't believe how many toilet rolls I've got through. I took people's advice and found that the bi-carb mouth...
  • Blog Post: Fatigue and Wiltshire a Farm Foods

    One thing that has come as quite a surprise is how much worse the fatigue has become over the last 4 or 5 days. I found that even taking a shower yesterday I felt exhausted washing my hair and had to stop for a break. I'm also sleeping for much longer over night so I'm not getting going till...
  • Blog Post: 4 weeks into recovery

    I think it's 4 weeks tomorrow that I finished my 6 week course of RT for salivary gland cancer. This week it feels like things are picking up. Firstly I have started to eat real food. When I say real, I'm not sure it would be to everyone's tastes, but I'm moving beyond ensures, and pureed...
  • Blog Post: 4th Week of recovery

    The steroids have definitely helped with my appetite, and the more I've been trying to eat the better the swallow reflex has become. My preferred meal at the moment is pasta soup and bread (all in the same bowl) with cheese on the top. I think I do need to try and include a few more vegetables...
  • Blog Post: Recovery 5 weeks on and found a use for that mask (pic attached)

    I feel like I've really begun to turn the corner now, and the biggest factor in this is the improvement in my eating. The steroids have definitely improved my appetite, and I seem to be hungry all the time! I'm also managing to eat a much wider range of foods. I can chew on the side that still...