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  • Blog Post: Radiotherapy - Day 18

    Didn't have too bad a night last night. Still waking up every 3 hours to take my various medicines, and dealing with the dry mouth/ saliva issues but am getting back to sleep very quickly. The Dr had said I would need to increase the oramorph up to 5ml this week, but I'm still getting by on 2...
  • Blog Post: Day 48 - Consultants, insurance, eating more calories and waiting......

    The second appointment with the consultant was last Friday. He feels a bit like an old friend now, and I recognise the nurse too, so it's a comfortable experience now. Explained to him the results of everything that's happened since I last saw him and the dates for RT starting next week. He...
  • Blog Post: 1st Day without radiotherapy

    Today is my first day without radiotherapy, it feels such s relief not to be getting ready to trip of to the hospital although I do feel a bit lost without all those people around. The main thing that's changed is the increased mucous/ thick saliva that's being produced. There's a lot...
  • Blog Post: Recovery 5 weeks on and found a use for that mask (pic attached)

    I feel like I've really begun to turn the corner now, and the biggest factor in this is the improvement in my eating. The steroids have definitely improved my appetite, and I seem to be hungry all the time! I'm also managing to eat a much wider range of foods. I can chew on the side that still...
  • Blog Post: Fatigue and Wiltshire a Farm Foods

    One thing that has come as quite a surprise is how much worse the fatigue has become over the last 4 or 5 days. I found that even taking a shower yesterday I felt exhausted washing my hair and had to stop for a break. I'm also sleeping for much longer over night so I'm not getting going till...
  • Blog Post: Radiotherapy- 4 to go

    Into the final week. This seemed so far away at the start I can't believe I'm here now. Had the consultant meeting yesterday and although if lost a tiny bit more weight she said overall she was very pleased with how I've done on the food/weight front and that it's brilliant that I've...
  • Blog Post: Radiotherapy - into week 4

    Well last week I couldnt see myself making it into week 4 but I am more mentally prepared for it. I still have a mouth full of sores and ulcers, and the saliva has definately thickened up and become cloudy. I have a complicated drug taking routine which sees me alternating between paracetamol and diflofenac...
  • Blog Post: 1 week into Recovery

    So I had my last of 30 sessions of radiotherapy a week ago last Friday. The past week has been a bit of a struggle, the worse thing being the sudden onset of the Phlegm monster. I can't believe how many toilet rolls I've got through. I took people's advice and found that the bi-carb mouth...
  • Blog Post: Radiotherapy day 5 for salivary gland cancer

    Yesterday was the end of the first week. It was quite quick being zapped. I did feel much more tired last night - but that could just be general lack of sleep rather than anything related to the RT. I did woke up with a slight croak in my throat today but that wore off. I had an appointment with my...
  • Blog Post: 4th Week of recovery

    The steroids have definitely helped with my appetite, and the more I've been trying to eat the better the swallow reflex has become. My preferred meal at the moment is pasta soup and bread (all in the same bowl) with cheese on the top. I think I do need to try and include a few more vegetables...